Disease-related social situation in family of children with chronic kidney disease – parents` assessment. A multicentre study
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Department of Paediatric Nephrology, Wroclaw Medical University, Poland
Clinic of Paediatrics, Nephrology and Endocrinology, Silesian Medical University, Zabrze, Poland
Department of Pediatric & Adolescent Nephrology & Hypertension, Medical University of Gdansk, Poland
Department of Nephrology, Kidney Transplantation and Hypertension, The Children’s Memorial Health Institute, Warsaw, Poland
Department of Pediatric Cardiology and Nephrology, Poznan University of Medical Sciences, Poland
Department of Pediatrics and Nephrology, Medical University of Warsaw, Poland
Department of Nephrology, Children Hospital, Torun, Poland
Polish­American Children’s Hospital, Jagiellonian University, Krakow , Poland
Nephrology Division, Polish Mother’s Memorial Hospital Research Institute, Lodz, Poland
Department of Pediatrics and Nephrology, Medical University of Bialystok, Poland
Department of Pediatric Nephrology, Medical University of Lublin, Poland
Corresponding author
Katarzyna Kiliś-Pstrusińska   

Department of Paediatric Nephrology, Wroclaw Medical University, Poland
Ann Agric Environ Med. 2014;21(4):876-881
Introduction and objective:
Chronic kidney disease (CKD) in children burdens life of patients and their families. Little is known about parents` assessment of families’ social situation. However, the knowledge of the details of a patient’s and his family’s life standards might influence modification and optimization of applied therapy. Therefore, the main goal of the present study was to explore the selected elements of life situation of patients suffering with CKD as well as their parents, depending on the CKD stage and appropriate treatment.

Material and Methods:
Cross-sectional national study was conducted. A total of 203 children with CKD and 388 their parent-proxies (196 women and 192 men) were enrolled into this study. Patient data and questionnaires filled by both parents, concerning social-demographic parameters and assessment of changes in families after CKD diagnosis in the child, were analysed.

CKD children are being brought up in proper families whose financial situation is not good. Children need help in process of education. Perception of current situation differed between both parents in the change of the income source, taking care of CKD child, change in social relations and evaluating relations with medical staff. Parents do not obtain proper support from social workers.

Families of CKD children require support in area of financial and educational help for school children. The discrepancies in evaluation of family situation between mothers and fathers of ill children might be the source of conflicts possibly resulting in worsening the outcome for CKD children.

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