RESEARCH PAPER
Implementation of ICD-11 for Pediatric Neurodevelopmental Disorders: Clinical Challenges, Organizational Readiness, and Ensuring Equitable Access to Care Across Regional Disparities
More details
Hide details
1
Chair of Psychosocial Aspects of Medicine, Medical University, Lublin, Poland
2
Department of Psychotherapy and Rehabilitation Psychology, Institute of Psychology, The John Paul II Catholic University of Lublin, Poland
3
Department of Paediatric Nephrology, Faculty of Medicine, Medical University, Lublin, Poland
4
Doctoral School of Social Sciences, Maria Curie-Skłodowska University, Lublin, Poland
Corresponding author
Paulina Droździel
Department of Psychotherapy and Rehabilitation Psychology, Institute of Psychology, The John Paul II Catholic University of Lublin, Poland
KEYWORDS
TOPICS
ABSTRACT
Introduction and objective:
The transition from ICD-10 to ICD-11 reshapes the classification of paediatric neurodevelopmental disorders toward dimensional and function-oriented assessment. This review examines changes concerning Attention-Deficit/Hyperactivity Disorder (ADHD), Autism Spectrum Disorder (ASD), and Developmental Learning Disorders (DevLD), focusing on implementation and regional inequalities in access to care.
Review methods:
The critical narrative review examine ICD-11 revisions and their clinical, organizational, and health-system implications. Findings informed the proposed Integrated ICD-11 Neurodevelopmental Clinical Model (ICD-11-INCM), a conceptual framework requiring empirical validation.
Brief description of the state of knowledge:
ICD-11 emphasizes functional impairment, co-occurring conditions, and individualized support needs. Implementation depends on professional competencies, multidisciplinary resources, organizational readiness, and healthcare capacity. In under-resourced rural and community settings, staff shortages and inadequate referral pathways may impede access and increase pressure on primary care. Greater diagnostic flexibility may change referral patterns and increase demand for specialist assessment. Digital health and Medicine 4.0 are potential secondary supports, but as yet are unestablished solutions.
Summary:
Equitable implementation of ICD-11 requires coordinated clinical, organizational, and health-system measures that address regional inequalities and resource constraints. The proposed ICD-11-INCM model may inform implementation planning; however, the conclusions should be interpreted in light of the narrative review design, lack of empirical validation, and the heterogeneity of healthcare systems.
REFERENCES (38)
1.
World Health Organization. International statistical classification of diseases and related health problems. 11th revision. Geneva: World Health Organization; 2019. Available from:
https://www.who.int/standards/... (access: 2026.09.28).
2.
World Health Organization. The ICD-10 classification of mental and behavioural disorders: clinical descriptions and diagnostic guidelines. Geneva: World Health Organization; 1992. Available from:
https://cdn.who.int/media/docs... (access: 2026.09.28).
3.
Reed GM, First MB, Kogan CS, et al. Innovations and changes in the ICD-11 classification of mental, behavioural and neurodevelopmental disorders. World Psychiatry. 2019;18(1):3–19.
https://doi.org/10.1002/wps.20....
5.
Kotov R, Krueger RF, Watson D, et al. The Hierarchical Taxonomy of Psychopathology (HiTOP): a dimensional alternative to traditional nosologies. J Abnorm Psychol. 2017;126(4):454–477.
https://doi.org/10.1037/abn000....
9.
Snowling MJ, Hulme C. Interventions for children’s language and literacy difficulties. Int J Lang Commun Disord. 2012;47(1):27–34.
https://doi.org/10.1111/j.1460....
10.
Barłóg M, Barłóg K. Inter-professional and patient communication as part of the personalized treatment process. A patient-doctor-pharmacist-pharmaceutical plant relationship model. Q J Fides Ratio. 2022;50(2):117–122.
https://doi.org/10.34766/fetr.....
11.
Antezana L, Scarpa A, Valdespino A, et al. Rural trends in diagnosis and services for autism spectrum disorder. Front Psychol. 2017;8:590.
https://doi.org/10.3389/fpsyg.....
12.
Hine JF, Allin J, Allman A, et al. Increasing access to autism spectrum disorder diagnostic consultation in rural and underserved communities: streamlined evaluation within primary care. J Dev Behav Pediatr. 2020;41(1):16–22.
https://doi.org/10.1097/DBP.00....
13.
Thapar A, Rutter M. Neurodevelopmental disorders. In: Thapar A, Pine DS, Leckman JF, et al., editors. Rutter’s Child and Adolescent Psychiatry. 6th ed. Chichester: Wiley-Blackwell; 2015. p. 31–40.
https://doi.org/10.1002/978111....
14.
Tebartz van Elst L, Riedel A, Biscaldi-Schäfer M. The reclassification of neurodevelopmental disorders in ICD-11. Nervenarzt. 2025;96(Suppl 1):26–31.
https://doi.org/10.1007/s00115...
16.
Sturman N, Deckx L, van Driel ML. Methylphenidate for children and adolescents with autism spectrum disorder. Cochrane Database Syst Rev. 2017;11:CD011144.
https://doi.org/10.1002/146518....
17.
Pellicano E, den Houting J. Annual research review: shifting from ‘normal science’ to neurodiversity in autism science. J Child Psychol Psychiatry. 2022;63(4):381–396.
https://doi.org/10.1111/jcpp.1....
18.
Stein DJ, Szatmari P, Gaebel W, et al. Mental, behavioral and neurodevelopmental disorders in the ICD-11: an international perspective on key changes and controversies. BMC Med. 2020;18(1):21.
https://doi.org/10.1186/s12916....
19.
Rosen NE, Lord C, Volkmar FR. The diagnosis of autism: from Kanner to DSM-III to DSM-5 and beyond. J Autism Dev Disord. 2021;51(12):4253–4270.
https://doi.org/10.1007/s10803....
20.
Greaves-Lord K, Skuse D, Mandy W. Innovations of the ICD-11 in the field of autism spectrum disorder: a psychological approach. Clin Psychol Eur. 2022;4(Spec Issue):e10005.
https://doi.org/10.32872/cpe.1....
21.
Gomez R, Chen W, Houghton S. Differences between DSM-5-TR and ICD-11 revisions of attention deficit/hyperactivity disorder: a commentary on implications and opportunities. World J Psychiatry. 2023;13(5):138–143.
https://doi.org/10.5498/wjp.v1....
23.
Schulte-Körne G. Verpasste Chancen: Die neuen diagnostischen Leitlinien zur Lese-, Rechtschreib- und Rechenstörung der ICD-11 [Missed opportunities: the new ICD-11 diagnostic guidelines for reading, spelling and calculation disorders]. Z Kinder Jugendpsychiatr Psychother. 2021;49(6):463–467.
https://doi.org/10.1024/1422-4....
24.
Di Folco C, Guez A, Peyre H, et al. Epidemiology of reading disability: a comparison of DSM-5 and ICD-11 criteria. Sci Stud Read. 2022;26(4):337–355.
https://doi.org/10.1080/108884....
25.
Maier M, Powell D, Murchie P, et al. Systematic review of the effects of decision fatigue in healthcare professionals on medical decision-making. Health Psychol Rev. 2025;19(4):717–762.
https://doi.org/10.1080/174371....
26.
Harrison JE, Weber S, Jakob R, et al. ICD-11: an international classification of diseases for the twenty-first century. BMC Med Inform Decis Mak. 2021;21(Suppl 6):206.
https://doi.org/10.1186/s12911....
27.
Jose A, Tortorella GL, Vassolo R, et al. Professional competence and its effect on the implementation of Healthcare 4.0 technologies: scoping review and future research directions. Int J Environ Res Public Health. 2023;20(1):478.
https://doi.org/10.3390/ijerph....
28.
Hecklau F, Galeitzke M, Flachs S, et al. Holistic approach for human resource management in Industry 4.0. Procedia CIRP. 2016;54:1–6.
https://doi.org/10.1016/j.proc....
29.
Longhini J, Rossettini G, Palese A. Digital health competencies among health care professionals: systematic review. J Med Internet Res. 2022;24(8):e36414.
https://doi.org/10.2196/36414.
30.
Baum RA, Berman BD, Fussell JJ, et al. Child health needs and the developmental-behavioral pediatrics workforce supply: 2020–2040. Pediatrics. 2024;153(Suppl 2):e2023063678H.
https://doi.org/10.1542/peds.2....
31.
Cull WL, Burr WH, Somberg CA, et al. Primary care pediatrician assessment of access barriers and local supply of pediatric subspecialists. Acad Pediatr. 2026;26(6):103342.
https://doi.org/10.1016/j.acap....
32.
Topol E. Deep medicine: how artificial intelligence can make healthcare human again. London: Hachette UK; 2019.
33.
Antolí A, Chía L. Telehealth diagnostic assessment for autism and developmental language disorders: a systematic review. Acta Psychol (Amst). 2026;267:107156.
https://doi.org/10.1016/j.actp....
34.
Wieckowski AT, de Marchena A, Dickerson AF, et al. Autism diagnostic impressions in young children formed by primary care clinicians and through telemedicine expert assessments. Autism. 2025;29(11):2898–2905.
https://doi.org/10.1177/136236....
35.
Hantman RM, Zgodic A, Flory K, et al. Geographic disparities in availability of general and specialized pediatricians in the United States and prevalence of childhood neurodevelopmental disorders. J Pediatr. 2024;275:114188.
https://doi.org/10.1016/j.jped....
36.
Beltrán V, Abarza L, Acuña-Mardones P, et al. Effectiveness of digital and remote health interventions in pediatric populations from underserved or rural areas: a systematic review of randomized controlled trials. Int J Telemed Appl. 2026;2026:5586850.
https://doi.org/10.1155/ijta/5....
37.
Gillberg C. The ESSENCE in child psychiatry: early symptomatic syndromes eliciting neurodevelopmental clinical examinations. Res Dev Disabil. 2010;31(6):1543–1551.
https://doi.org/10.1016/j.ridd....
38.
Diemer MC, Gerstein E. Prior diagnoses and age of diagnosis in children later diagnosed with autism. J Autism Dev Disord. 2026;56(4):1460–1472.
https://doi.org/10.1007/s10803....