RESEARCH PAPER
Parents’ attitudes towards a difficult situation resulting from the chronic disease of their child
 
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1
University of Economics and Innovation, Department of Human Science, Lublin, Poland
2
Faculty of Health Sciences, Department of Paediatric Nursing, Medical University, Lublin, Poland
3
University of Radom, Poland
4
‘ Little Prince’ Hospice for Children, Lublin, Poland
5
Department of Medical Anthropology, Institute of Rural Health, Lublin, Poland
CORRESPONDING AUTHOR
Ewa Guz   

University of Economics and Innovation, Department of Human Science, Projektowa 4, 20-209, Lulin, Poland
 
KEYWORDS
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ABSTRACT
Introduction and objective:
The family is a reliable and permanent source of support for every human being. It is the key link in the welfare system. The aim of the study is to assess parents’ attitudes towards the occurrence of a difficult situation resulting from a child’s chronic illness.

Material and methods:
The study involved randomly selected parents of children with chronic diseases (N=107). The study was carried out at the Dental Clinic of the ‘Little Prince’ Children’s Hospice in Lublin.

Results:
The study revealed that for parents a difficult life situation is mainly associated with the disability of a family member or a friend, whereas the action approach is the most frequently chosen attitude towards a child’s chronic disease. In the examined group of parents, a significant correlation was observed between the age of the parents and the choice of a specific parental attitude towards the child’s chronic disease (in terms of intellectual approach). However, no significant correlations were found between the parents’ place of residence and the choice of a specific parental attitude towards the chronic disease of a child.

Conclusions:
During the diagnosis of chronically ill children, parents should also be educated in this regard. Therapy and psychological help, as well as directing parents to relevant support groups, organizations or associations, will prove immensely valuable while coping with a difficult life situation.

 
REFERENCES (21)
1.
Kózka M, Perek M, Gruszecka-Kruszecka A. Attitudes of parents of children after bone marrow transplantation. Probl Piel. 2015; 19: 5–12.
 
2.
DeLambo KE, Ievers-Landis CE, Drotar D, Quittner AL. Association of observed family relationship quality and problem-solving skills with treatment adherence in older children and adolescents with cystic fibrosis. J Pediatr Psychol. 2004; 29(5): 343–353.
 
3.
Everett Jones S, Lollar D.J, Relationship between physical disabilities or longtermhealth problems and health risk behaviors or conditions among US high school students. J School Health. 2008; 78: 5.
 
4.
Perrin JM, Gnanasekaran S, Delahaye J. Psychosocial aspects of chronic health conditions. Pediatr Rev. 2012; (33): 2.
 
5.
Khymko M, Cylkowska-Nowak M. Issues of gender differences in parental attitudes towards a child with autism. Now Lek. 2012; 3(81): 239–243.
 
6.
Kirk S, Beatty S, Callery P, Milnes L, Pryjmachuk S. Perceptions of effective self-care support for children and young people with long-term conditions. J Clin Nurs. 2012; 21(13–14).
 
7.
Nerenz D, Leventhal H. Self-regulation theory in chronic illness. In: Burish T, Bradley L red. Coping with Chronic Disease Research and Applications. New York: Academic Press; 1983: 13–37.
 
8.
Knafl KA, Deatrick JA, Havill NL. Continued development of the family management style framework. Research Support, N.I.H., Extramural Research Support, Non-U.S. Gov’t Review. J Fam Nurs. 2012; 18(1): 11–34.
 
9.
Habibpour Z, Mahmoudi H, Nir MS, Areshtanab HN. Resilience and its Predictors among the Parents of Children with Cancer: A Descriptive-Correlational Study. Indian J Palliat Care. 2019; 25(1): 79–83.
 
10.
Kelly ME, Duff H, Kelly S, McHugh Power, JE, Brennan S, Lawlor BA, et al. The impact of social activities, social networks, social support and social relationships on the cognitive functioning of healthy older adults: a systematic review. Syst Rev. 2017; 6(1): 259.
 
11.
Marcinowicz L, Abramowicz P, Zarzycka D, Abramowicz M, Konstantynowicz J. How hospitalized children and parents perceive nurses and hospital amenities: a qualitative descriptive study in Poland. Child Health Care. 2016; 20(1): 120–128.
 
12.
Rzeszutek M, Oniszczenko W, Firląg-Burkacka E. Social support, stress coping strategies, resilience and posttraumatic growth in a Polish sample of HIV-infected individuals: results of a 1 year longitudinal study. Int J Behav Med. 2017: 356–378.
 
13.
Pilecka W, Stachel M. Psychologia zdrowia dzieci i młodzieży. Perspek-ty wa kliniczna, Wydawnictwo Uniwersytetu Jagiellońskiego, Kraków 2011.
 
14.
Carlson JM, Miller PA. Family burden, child disability, and the adjustment of mothers caring for children with epilepsy: Role of social support and coping. Epilepsy Behav. 2017; 68: 168–173.
 
15.
Santos S, Crespo C, Silva N, Canavarro MC. Quality of Life and Adjustment in Youths with Asthma: The Contributions of Family Rituals and the Family Environment. Fam Process. 2012; 51(4): 557–569.
 
16.
Molesztak A. Support and psychological gender in females and males – a research report. Culture – Society – Education 2016; 2(10): 151–162.
 
17.
Valtorta NK, Kanaan M, Gilbody S, Ronzi S, Hanratty B. Loneliness and social isolation as risk factors for coronary heart disease and stroke: systematic review and meta-analysis of longitudinal observational studies. Heart 2016; 102(13): 1009–1016.
 
18.
Tanskanen J, Anttila T. A prospective study of social isolation, loneliness, and mortality in Finland. AJPH 2016; 106(11): 2042–2048..
 
19.
Wollenhaupt J, Rodgers B, Sawin KJ. Family management of a chronic health condition: perspectives of adolescents. J Family Nurs. 2012; 18(1): 65–90.
 
20.
Ledwoń M, Wróbel M. Mood regulation and stress management among mothers of children with cancer. Psychoonkol 2006; 2(10): 41–50.
 
21.
Lepiarz A. Mental health problems in parents of children with cancer. Onkol Pol. 2012; 1–2: 104.
 
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